Social media and raising awareness of little known illnesses and incredible people!

This is a bit of an odd post, but one for some reason I feel compelled to write...... 

Now social media like Facebook and twitter can cause a lot of problems for some people - you only have to watch an episode of Jeremy Kyle and hear about some relationship destroyed by facebook. In fact there are TV programmes devoted to mishaps from social media sites. 

But Facebook can be useful in many ways..... Through it I have being educated on several inspirational people who are undergoing difficult times but still remaining positive and who work endlessly to promote awareness of their suffering. 

The main page that I follow is Claudia's Cause this is about a young girl who has Metastatic PineoBlastoma  a rare and aggressive tumour within her brain. Her family are a huge inspiration to me when I am feeling low and fed up, what they are going through on a daily basis is unbelievable. As a mum I find the whole family brave and incredible and I do feel honoured that through the regular updates we can be a part of the struggle with this horrible incurable illness. 

As well as round the clock intensive nursing the family are big fundraisers and advocates for charities such as  Headsmart an organisation devoted to helping diagnosis of brain tumours in children and young adults. Clic sargent a charity for children with cancer and Believe in Magic who help provide wishes and dreams for really poorly children. Only recently a Ball was held as a fundraising project and over £8000 was made to help these well deserved causes. It is this I find truly inspirational..... I don't know if I could have the energy or love to work tirelessly for others at the same time as witnessing the huge suffering of my child. I would like to think that I would be as generous with my time and as positive as Claudia's mum and dad, but in reality I think if I was in a similar situation I would fall apart. 

Only a couple of years ago I watched my dad going though a similar illness and I thought it unjust and cruel because he was only 50. Perhaps it is witnessing his pain and strength that made Claudia's story appeal to me so much? She seems to have the strength of a million men and seems to be fighting tirelessly against this disease which is debilitating her. 

It has touched me so much that I log into her page on a daily basis just to see how she is and how her amazing supportive family are doing. But when I have been reading the updates it seems to me that people are messaging offering their 'not so supportive advice!'  This annoys me so much-  how dare people pass judgement on this family when they are not walking in their shoes???? Could they help raise awareness and funds to help others when going though such life changing events?? Yes we as readers all have an opinion when someone is sharing intimate details of their lives with us....but respectful people would keep these opinions to themselves. 

That is just my thoughts anyway.... I wanted to help raise awareness of this amazing family and worthwhile causes they campaign for. I would love to be able to contribute more and offer a financial donation to the charities but until I get a job I am unable to. So if this post makes a few more people aware of the illness then I feel that is ok for now.... as soon as I am in a position to donate then I will. 

(If you want to read more of Claudia's cause then there is also a webpage here   http://www.claudiascause.co.uk/  ) 

12 Years on - September the 11th 2001 (Not the happiest post but a reflective one!!)

I remember this date 12 years ago very vividly. I know a lot of people will because of the enormity and scale of the attack and those in America specifically will remember it even more and probably for more personal reasons than me. But I still like to show my respect and think about those who experienced 1st hand the events of that date. 

I was 18 when it happened and had a 2 month old premature baby, which is why I think it hit home to me a lot more than if it had happened before my little boy was born. My son was ill when he was born and spent some time in special care - however he was cradled in my arms and I was snuggled up on the sofa watching my daytime soaps and telly. As a new mum I was absorbed in every little facial expression and movement my son made when all of a sudden I looked up at the telly. (I couldn't hear the change from the soap to breaking news bulletin because I was still deaf back then!!) But what I witnessed live on the news shocked me to my core! 

From the moment I turned the volume up I was engrossed in the events unfolding before my eyes. I wasn't even aware of these 2 skyscrapers towering above New York until this point - and to see the 2nd plane hit and then the subsequent falling down of them both made me cuddle my son that little bit tighter. 

As the years have passed I have always spared a thought to those involved closely to the days events, I have also since watched documentaries which focus on the events and heroes of the day. But today it is really important in my opinion to think about how lucky I am to be able to watch my kids grow up and become young adults. 

Royal Baby Ramblings - viewpoints on the whole excitement from me and my daughter!!

Whilst watching all the coverage of the Cambridge's birth and the following celebrations I got called a Royalist! I would not say I was a Royalist exactly but as a history lover I think anything to do with the Royals will be talked about for years to come so I like to make sure I am aware of it and keeping an eye on current affairs! 

I did fully get caught up in the hype of watching the Lindo wing door on a live webcam even though I knew that the likelihood of seeing something was slim. I got so engrossed I even missed out on about 4 days worth of entering competitions! (Even the many comps that were about the Royal birth!!) Yesterday when I was waiting for the new family to emerge I even delayed making food for the kids so I didnt miss anything! So yeah perhaps you could say I have Royalist tendancies! 

But I never saw any significant Royal Births before and I do admire Will and Kate so much for their obvious love for one another so think they will do a fantastic job of combining royal duties with making happy memories. 

Watching the coverage was a first for me having been to young for Wills and Harry's - but to me this was even better because my kids watched it too we get to share the memory together. Now in years to come me and my little girl can say "Yeah we watched Cambridge Junior on the telly for his 1st royal wave!!" 

My daughter wrote some of her thoughts about it all down, so I thought I would include them on here to preserve them....

(From the mouth of an 8 year old girl.......)

"I think the Royal Baby will be a King full of courage and keep to the law. When I watched the News I thought he was so cute and I thought that Will and Kate will make good parents. I also think he will be clever when he is king! His mum and dad will look after him very well and the Queen will also love him."

It would be nice now if the family could have some time out from all the media intrusion, although I think William will ensure that they do! They should be able to go about things like walking in the park and meeting up with family without the fear of Paparazzi following them everywhere! But I probably have this view because of what happened to Princess Diana - you can't help but think of her at this emotional time. She would be so proud of how her two boys are handling themselves in this modern world! 

A - Z - D Drink drivers and the drinking youth culture!!

According to the Royal Society for the Prevention of Road accidents in 2011 there were over 10000 people injured by drink drivers. 280 people were killed whilst 1290 were seriously injured! (See source here...)

But most of the victims of drink driving accidents are those who are not under the influence - this includes the elderly and young children. Yet still some drivers still insist they are ok to get behind the wheel of a car!! I do not drive and nor do I drink but I am a daughter and a mum and worry on a regular basis how many idiots are on the road whilst under the influence. It is my worst nightmare that something could happen to my mum or my kids because someone could not make a responsible decision and either not have a drink or have a drink but not drive....

Times are hard in this country and I do not begrudge someone wanting a tipple to take the stress of the day away! But I do believe that one drink can lead to more and stresses can mean some people find it hard to stop drinking even when they are over their personal limit! 

And there are those people who do not work who spend all day watching telly and drinking - using benefit money to sit there paralytic  How does this happen?..... Looking around the supermarkets it is hardly surprising people can afford to drink so much and so often. There are offers on bulk buying alcohol all the time - and own brand alcohol is so cheap therefore it is not surprising that so many people drink so much so often......

For this reason unfortunately I can not see this problem getting better in the future- the government make so much tax on the sale of alcohol that they will not take measures to prevent this excessive drinking. They will not make it harder to buy alcohol when they can earn money from the sales. The state of the economy will mean more people will want a drink to eradicate the stress of life and in my opinion the country will get worse before the country improves. 

So I have a feeling this pet peeve of mine will continue for a long time - how many people will suffer from alcohol related accidents in the mean time???? 

A-Z the letter C (Coalition Government and how everyday families are suffering!)

This one was tricky - my first thought went to Cruelty to animals and then Chewing with your mouth open! 

But eventually I settled on the state of England and in particular since the Coalition Government came into power..... 

(This does not mean that I think Cruelty to animals is not as bad as this, however Cruelty is a common peeve or hate and the majority of 'normal' people agree it is wrong. I thought the Coalition Gov was a more 'risque' post and something specific to 2013 which is why I opted for this!!) 

I am not a political person, I know very little on the in's and outs of life in Westminster (in this era anyway - historically I know more about politics!) but I do know how everyday people up north feel about the situation created down south on the banks of the Thames. This maybe a generalisation because I can not speak for all us Northern folk, but everyone I speak to is disgusted at the state of the country now. It has been increasingly getting worse for many years, but since the two culprits above came into power the lower classes seem to have been made lower. The job market is poor yet benefits changes are been made which mean people suffer (bedroom tax is a prime example of this!). The only people who do not seem to suffer at these cut backs and the inflation rates are those sat in the houses of parliament and the fat cats in charge of major companies. 

But the worst thing in my opinion is the ignorance of this suffering and hardship. Tv programmes highlight situations for poorer people on a weekly basis. (Recently Skint on Channel 4, and even programmes like Secrets of Shoplifters illustrate how times are hard) yet we still have politicians stating they could live on £50 a week!!!!!!!!!!!

Do they know and appreciate how hard it is to feed people on a small budget? how difficult it can be saying no time and time again to kids who want an icecream or sweets? I sincerely doubt that!!!! Not all those people who shoplift or do perhaps 'dodgy' things are career criminals- they are parents who are struggling to put food on the table and clothes on kids backs. 

As a family we have not shoplifted or been reduced to low levels to provide for our children. But my husband has now lost his job due to health issues and is unfit to work for  the unforeseeable future. I am looking for work but with these gunky ear infections and deafness it is a struggle. So now we are going to be one of those families who struggle and have to survive on state handouts!! It is worth mentioning my hubby has worked full time and paid his taxes and National insurance for 27 years. So it is bad and wrong to be surviving on government money - but he has paid into the pot over the years! 

Never would we be reduced to stealing to cope with this downfall - but it gives us an understanding on how people can do this because there are more people out there who are much worse off than us!! As a family we are resourceful and can make cheap and healthy food and repair things instead of replacing but not everyone has the know how or ability to cook properly or mend things. 

I just wish that David Cameron and Nick Clegg could see this; not all people who claim benefits are avoiding work but the majority of them are people who are just down on their luck and struggling to eat and stay warm. They should look at families like mine and many others I know and realise how life is for people who are not in power and who do not have life savings and an inheritance! People who are ill or who have been made redundant because of the state of the economy should not be put in the same category as those idiots who purposely sit on their butts all day and have no intention of working (legally). 

I could go on about this because it a subject so close to me and many people I know and care about - and I accept that this government did not necessarily cause this- but they are not helping and still remain ignorant to a lot of people's plights!

But a magic wand can not be waved - I have a feeling the situation is set to get a whole lot worse before it gets better!!! 

Would be interesting to know what others think?

It will also be interesting to look back and review this situation and subject in a year or more and see my opinions on it then!!! 

A catch up with me..... (kids, easter, comping, Maggie Thatcher and life in general)

Firstly I was going to apologies for not writing in so long.... but then I figured that I have never set a rule to what and when I will update this blog of mine so I should not feel so guilty for not been on here in a while!!!!

I haven't been particularly busy as such I have just been entering a lot of competitions. My hubby on sick now and his sick pay run out so we are 'attempting' to live on £800 a month. I say attempting because it is so hard and emotionally draining with every day been a battle to sort out some money and battle some other organisation. Looking for jobs is depressing when you have been trying for so long and sometimes life just seems cruel and unfair!! So I have been on a comping frenzy to win things to make me smile and things to make my life easier! I haven't done bad if you check out my comping prize tab!

I've still been on the job hunt, and trying to settle in our new puppy (Buddy) and the Easter holidays were a fab time to chill with my kids without the early school runs and homework panic! But I was happy to see them off in their uniforms yesterday morning ready for a day of not been at beck and call every 2 seconds! I'm human and although I love my babies they are full of energy and noise and beans..... a break from them is needed once in a while. (And I get no help from our parents or families so the only time out we get is when they at school!!)

My ears have still been bad... it has got to the stage where they are bad all the time so I am used to gunk leaking all the time!! Nice imagery I know but its not nice to live with neither! I really need to make another hospital appointment and see the specialist!

Finally in this rambling mess of a post MAGGIE THATCHER... I am in the group of people who are disgusted with the amount of expense and fuss that is been made over her funeral. I do agree she needs to be shown some respect but not to the extent that it has been planned. Coming from Yorkshire I know many people who were affected by the mining strikes and other protests that happened when I was a twinkle in my dads eye! (My grandad always worked down the pits and suffered lots of upset at the hands of this woman.) I admire her straight talking and everything she did for feminism but still think she caused more problems for people than she solved. Out country is in a financial mess and children and their parents are going without meals to survive and yet the country is paying to bury a woman who caused financial hardship for many. Why can't her own funds  pay for the funeral? She must have plenty of money and so must her family who did well off her name... so why dont they put their hands in their pockets and the money tax payers have spent on her funeral could be used for families who can't afford to eat?

So there a rambling post complete with a rant... not everyone will agree with me but I wanted to have my say non the less.....

The Neverending Winter........

Like a lot of the UK I woke up Friday morning to find snow covering everywhere. This is the 22nd march (above photo) so officially the 2nd day of Spring. My son was pleased because his school was closed, my daughter's school was one of the only ones in the area to be open but she was worried her after school disco would be cancelled. And the other half stressed some more about heating costs. 

Nothing can be done about the weather though - so we went to bed hoping that the snow would go or stop at least.....

But it didn't as the other two photos show!! 

I like snow.... its good cheap family fun. But like most things there is a time and place for it... spring is for daffodils, baby birds and lambs. Not snowballs and icicles!!! I cant help but feel for all the animals who would usually be having babies at this time... all the lambs out in the fields shivering instead of frolicking! All the birds trying to build nests in tree branches laden with snow! 

I just hope it doesn't last too long.... I have had enough of this cold now...

Google Petition - please sign

A lot of you have heard that from April Google plus is no more!

In reading up about why and how and all the in's and out's of the decision I have stumbled upon this Petition set up on www.change.org. Dan Lewis from New York set it up and at the time of writing this is has had 101,809 supporters . I myself am one of those!!!

The petitions objective is written below - and if you agree then the link to follow is at the bottom of this post! 

Dear Google:

A few years ago -- years, wow -- Google Reader was one of my go-to social networks. It was an accidental one. I was using it for its intended purpose -- aggregating and reading a lot of web content in one place -- but it turns out, a lot of other people were doing the same thing. A lot. Many of which shared interests and when you added the amazing (amazing!) share and comment features, Google Reader blossomed into a wonderful experience for many of us, core to our day-to-day consumption of content online.

Unfortunately, you decided to kill those "extra" functions. I'm not here to ask you to reverse that (you should, though). In doing so, Google Reader's day-to-day value declined, and I, like many, ended up using it less often. Instead of hitting the bookmarklet I have on my Chrome install three, four times a day, it's now a once a day (okay, once every other day more often, recently) experience.

But it's still a core part of my Internet use. And of the many, many others who are signed below.

Our confidence in Google's other products -- Gmail, YouTube, and yes, even Plus -- requires that we trust you in respecting how and why we use your other products. This isn't just about our data in Reader. This is about us using your product because we love it, because it makes our lives better, and because we trust you not to nuke it.

Oh.

So, please don't destroy that trust. You're a huge corporation, with a market cap which rivals the GDP of nations. You're able to dedicate 20% of your time to products which may never seen the light of day. You experiment in self-driving cars and really cool eyewear which we trust (trust!) you'll use in a manner respectful to our needs, interests, etc.

Show us you care.

Don't kill Google Reader.

KEEP GOOGLE READER RUNNING  sign here

RANT - The current meat scandal!

I have been writing on here for many weeks now and still have not really had a rant... which is what the blog is named for. So I've made the decision to voice my opinions on the meat scandal that is in the UK headlines at the moment. 

I understand this might offend some people and for that I apologise but I feel like I want to make a note of this topic for reference in later years. (Look at me planning on years worth of writing this blog!! - haha

Without going on too much about the facts - which can be found on most British news sites - it has come to light that Horse meat has been sold in many products within the food market. I have two main issues with this; 

INCORRECT FOOD LABELLING - I am a meat eater, my children eat meat too and I believe animals can be breed for meat and food purposes. However I do think that all food should be labelled with the exact product that it contains. Personally I have tried several of the more 'unusual' meats like Ostrich and Kangaroo- so I would not be adverse to trying Horse. But I do want to know what I am eating and in turn feeding my children. 

THE USE OF DANGEROUS CHEMICALS IN THE FOOD CHAIN - If Horse has been introduced to the general food chain and the meat is not regulated then there is the risk of ingesting chemicals which are dangerous to us. Again because I am feeding children this is a huge worry to me as I imagine it is to many other parents? 

I am not here to try and challenge the government and I am not (totally) anti-government but I do believe that the root of all this scandal lies at their hands. Slowly over the past few years the economy has worsened and normal working families are struggling to provide healthy meals for their kids. Parents are even going without meals to make sure that their kids have enough food. I am sure more mums and dads would love to be able to afford a weekly trip to a proper butcher with controlled meat products but it is simply too expensive to afford the best meat all the time. Therefore cheaper products are bought and it is these inferior ones that are the main issue. 

Thankfully when I do purchase ready made burgers I do only buy the better brands, but what about the families that can only afford the 8 for a £1 variety? I can only imagine their worry, and it doesn't exactly install us with hope when the Big Boss managers of these stores admit they wouldn't even eat their own products. 

The more that comes to light in the news about the economy and how messed up the countries finances are it is becoming more apparent that there is a 'Rich / Poor' divide again and the gap is widening between the two.  The government officials do not seem worried that their children will potentially be affected by the meat scandal but then again I can't see them shopping at cheaper budget supermarkets when they can afford organic and the best products.

I can't see much changing in the short run, but I do hope that it does not come to light about ill effects in people because they have ingested inferior products. Unfortunately it may take something like that for the politicians to sit up and realise not all of us are privileged enough to shop in 'proper' places. And not all of us are educated enough to be able to provide a cheap but balanced and healthy diet for our children. Reporters on day time TV can see it, the general public can see it but our representatives in Westminster seem to be blind to the problem. 

I would be interested in seeing what other 'normal' people think to this current news topic.....